Since colitis is believed to be a result of the body’s immune system mistakenly attacking friendly bacteria, they thought the medication might help get it under control. The doctors said my only other option was to take tacrolimus, an immunosuppressive drug typically given to people undergoing organ transplant surgery. She told them that I’d only gotten worse under their care and that she didn’t want them to operate on me. I was in so much pain at that point that I was up for anything. The gastroenterologist tried to do another colonoscopy but was unable to get the camera past my rectum because my colon was so inflamed. I could barely walk and was so weak that I couldn’t even get out of bed to go to the bathroom, so I was in adult diapers, and my mom had to clean up after me.īy the fifth week in the hospital, I had lost 50 pounds. I began to have intense abdominal pain that I needed strong painkillers for. Soon I was having 15 bowel movements a day, often bloody. The doctors stopped giving me solid foods, with the hope that the medications would work better on my empty stomach. At this point I’d been in the hospital for weeks and lost 30 pounds. My parents flew in from New Zealand to be with me. Sometimes I couldn’t even make it to the bathroom, so I asked for a smaller, private room with a more accessible bathroom. The frequency of my bowel movements continued to increase. My doctors put me on steroids to try and help my symptoms, to no effect. I remained in the hospital, as I started having upwards of 10 bowel movements each day. The hospital gave me miso soup, rice porridge, half a raw egg, and some fish with soy sauce, as these were supposed to be easy to digest for colitis and Crohn’s patients. I went from around four bloody bowel movements per day to six or seven by the end of the week. I also had to insert a mesalamine suppository. I was put in the gastro ward and given antibiotics and aminosalicylate (5-ASA).
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